Last year, Celine Dion announced that she was canceling her world tour due to health issues. This is after Celine Dion was diagnosed with Stiff-Person Syndrome (SPS) in 2022.
Celine Dion opened up about whether she would ever tour again, adding that she hopes there will be a miracle cure for the disease.
“I haven’t beat the disease, as it’s still within me and always will be. I hope that we’ll find a miracle, a way to cure it with scientific research, but for now, I have to learn to live with it.”
Celine Dion
The ‘My Heart Will Go On’ hitmaker revealed that she cannot confirm if she will go back to touring.
“For four years I’ve been saying to myself that I’m not going back, that I’m ready, that I’m not ready. As things stand, I can’t stand here and say to you: ‘Yes, in four months.’ I don’t know… My body will tell me.
“On the other hand, I don’t just want to wait. It’s morally hard to live from day to day. It’s hard, I’m working very hard and tomorrow will be even harder. Tomorrow is another day.”
Celine Dion
She noted that although she is struggling, she continues to be determined.
“But there’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s the determination,” she said.
The singer stated that what keeps her going is the love of her family and children, the love of the fans too, and the support of her team, adding that she is grateful to have the means to treat her health conditions.
“People who suffer from SPS may not be lucky enough or have the means to have good doctors and good treatments. I have those means, and this is a gift. What’s more, I have this strength within me. I know that nothing is going to stop me.”
Celine Dion
She also revealed that she has stopped questioning why she is suffering from the disease and has learned to live with it.
“I work on my toes, my knees, my calves, my fingers, my singing, my voice. I have to learn to live with it now and stop questioning myself. At the beginning I would ask myself: why me? How did this happen? What have I done? Is this my fault? Life doesn’t give you any answers. You just have to live it! I have this illness for some unknown reason.”
Celine Dion
Celine Dion assured that she will continue to work hard to recover.
“The way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and it’s over. I stay at home, listen to my songs, stand in front of my mirror, and sing to myself. I’ve chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!”
Celine Dion
Celine Dion Reflects on Grammy Honor
Celine Dion revealed the reason why she decided to wear a coat while making a surprise appearance at the 2024 Grammys in February.
The star, 56, shocked fans as she showed up at the ceremony amid her battle with incurable Stiff-Person Syndrome to present Taylor Swift with The Album of the Year award.
Celine shared why she opted to wear a mustard yellow Valentino coat over her gown at the event.
“It made me feel better for a moment to hold onto this coat, to hide myself a little bit from all these little things. It was very nerve-wracking, but at the same time, a big honor. That magic. That excitement. To see the fans, to see the crowd. To see show business again.”
Celine Dion
The “My Heart Will Go On” singer was styled by Law Roach for the evening. He is known for his work with Euphoria star Zendaya.
“I was like, ‘You can walk onstage with a coat?’ Oh yeah! You can do whatever you want in fashion, have a good time, wear that coat, own that coat, go for it,” Celine said of her decision to wear the coat.
While speaking about wanting to ‘hide’ in the coat the five-time Grammy winner started singing the words from her 2019 track ‘Imperfections’.
“I got my own imperfections. I got my own… I got my own, whole… So, we did it,” she sang.
The appearance was one of just a few public ones that she’s made over the past few years after she was diagnosed with the rare neurological disorder Stiff-Person Syndrome (SPS) in 2022.
As she stepped out on stage she was accompanied by her son René-Charles Angélil, 23.
“It took a lot, a lot out of me. But my son, René Charles came and gave me his support. And to present the award, the Album of the Year to Taylor Swift was an honor because she’s having the time of her life and I’m the one who’s presenting it to her.”
Celine Dion
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